Tuesday, December 14, 2010

Well sadly Lucy's neutrophils were too low for her to have her bone marrow biopsy and lumbar puncture on Monday - well they were as low as you can get - 0! I thought it was a little optimistic to book her in but I suppose if she had happened to have recovered quickly it would have been good to get it over with.

Oh well. It's been put off until 5 January 2011. Between now and then we will have a little break from the hospital, except for the Christmas Party on Thursday, which is nice as I'm finding it harder and harder to go there. So many kids just look so unwell, and it's just hard to be there. I'm very grateful for some lovely friends and my lovely mum who often accompany me on clinic visits. Very much appreciated.

Lucy is well, but continuing in her no drinking phase. Since weaning in the middle of her treatment, Lucy has shown no interest in any kind of liquid or any mode of delivery thereof. Any ideas for getting her to drink? At the moment she just has lots of water or milk added to her food! She seems to be ok, but with less hair her depressed fontanel (gap between plates in a baby's skull which closes over gradually) is really obvious and makes me feel a bit guilty (it's often taken as a sign of dehydration)! Mmmm.

I had a great night last night with some friends at the U2 concert at ANZ Stadium. Much screaming and singing. Good therapy really and made me feel a bit young and carefree for a few hours. And today was Jasmine's last day of pre-school. We got to enjoy a great performance of the kids' favourite songs. Jasmine's 'mean' facial expressions during "Shane & Josh".... "were the meanest partners the world has ever seen" were just priceless. Next stop big school...

Here's Lucy's latest trick - crawling - not the best video but it gives the idea. She's still a bit froggy with the legs but she's getting there!

1 comment:

Karin Stace said...

Yay for crawling little Miss Lucy!!!! Any chance making your own watery iceblocks would work? You know, those special iceblock making sticks you can buy??? Might be fun- but you may have already tried it. Lots of love, Karin xx