Holding onto the good things....

Good things about not being in hospital -

1. Pancakes for Saturday breakfast

2. Yum cha for Saturday lunch

3. Take away Thai for Saturday dinner (notice a pattern..... we REALLY didn't feel like cooking or even reheating, other than the pancakes!)

4. Going to church (although it was a bit a of teary morning!) together.

5. Getting some time to myself over the weekend to sew a skirt and visit a lovely handmade recycled timber furniture shop (where we got our dining table years ago) to ogle at nice stuff and resist purchasing urges...

6. Finding out the outside freezer was accidentally unplugged so I could cook a whole lot of stuff today that was partially defrosted with Mum on hand to clear out the other stuff in the freezer.

7. Finally catching up on washing from last weekend....

8. Being able to buy Emma new sneakers to replace the holey ones she's been wearing for ages....

9. Reading stories to my girls tonight.

10. Just not having to be at the hospital.

I almost cried when the doctor told me on Friday that Lucy's bloods weren't recovered enough to start the next cycle of chemo - literally almost cried, there was welling going on. Rather than dwell on something I couldn't change I have decided to look for good things about not being in hospital. Of course the longer we are delayed, the longer the whole thing goes on, but I really can't be upset with Lucy struggling to grow neutrophils now can I?!

Anyway, as you can see from the list above, there are some good things about not being in the hospital even though we want to get this all over with....

I had a bit of a feel in Lucy's mouth tonight, and it's starting to feel a bit lumpy in there - so maybe we're on the verge of seeing some teeth!! Apparently it's quite common for babies with down syndrome to have delayed eruption of first teeth - some kids don't get any till after 2 years old, and often in a wierd order. Anyway, we haven't seen any sign of any till now despite red cheeks since about 4 months old and many comments of 'she must be teething', but maybe she's working on teeth rather than neutrophils....

Anyway, no beds were available today, so we'll try again tomorrow. Hold onto the positive man!