Hi all, sorry for a quiet week. Thankfully it's been quite uneventful from a Lucy point of view! She's been a bit vomity, but otherwise quite well. Her blood levels are low, but stable, and she hasn't needed any more transfusions this week although she's likely to need some next week. She's eating reasonably well, not drinking heaps - she's settled on pretty much just having a breastfeed in the mornings and maybe a little at night, and we're trying to get her to drink some formula from a cup, with mixed success (well 'success' would be putting way too positive a spin on it....).

Adam has been away for work part of this week, and whilst we are well supported with great help from our families and friends, I can't help but feel bit like my legs are missing or something when he's far away! Since Lucy has been sick Adam has been the organiser extraordinair keeping everything going at home. Even though everything was covered (and sometimes doubly covered - sorry for the mixups Katie and Penny!) I just feel like my brain can't cope with the logisitics required to keep everyone cared for and in the place they should be. Combined with a foggy head, fractious children and a bit of vomit, there were a few ugly moments. It's feels ironic that Lucy is actually the easiest of the bunch to handle!

Anyway, true to character I figured cupcakes were the answer and yesterday we tried a new recipe for chocolate cupcakes that included cutting out their centres when they were hot and poking in marshmallows which went delightfully squoogy! Very good, and also enjoyed by little cousin Sophia.

I've been struggling to read the Bible at all lately, and had a thought driving to the hospital one day that maybe some music would help me get back into the Word. For someone who has never bought Christian music other than Colin Buchanen and a few Emu CDs I wasn't sure where to look. Remembering a song my lovely friend Karin shared with our Bible Study this year I thought I'd get the CD that song was on - Casting Crowns Livesong or something. Anyway, here are some of the lyrics of their beautiful song "Love them like Jesus" which helped to refocus my thoughts and feelings about life, the kids and all that....

Just love them like Jesus, carry them to Him
His yoke is easy, His burden is light
You don’t need the answers to all of life’s questions
Just know that He loves them and stay by their side
Love them like Jesus

Lord of all creation holds our lives in His hands
The God of all the nations holds our lives in His hands
The Rock of our salvation holds our lives in His hands
He cares for them just as He cares for you

So love them like Jesus, love them like Jesus
You don’t need the answers to all of life’s questions
Just know that He loves them and stay by their side
Love them like Jesus
Love them like Jesus


Hopefully Lucy will be out of hospital for the next 10 days or so before her next biopsy and 3rd round of chemo which I think will be 4 days straight in hospital. We are thankful as ever for her great tolerance of the treatment so far.


We are hoping to have Lucy baptised at church soon - maybe after the next round of chemo. We're looking forward to celebrating what Jesus has done for her (and all of us!). It is so wonderfully comforting to know she (and all our family) is completely safe in His hands, whatever happens.